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The POTScast

Standing Up to POTS, Inc.

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness.

Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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  • 30 episodes
  • weekly
  • Avg 43 min
  • English

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Episodes 30

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  • May 26 · 1 hr

    A happy ending after surgeries, stenting, & a renal auto-transplant - with Simone Erdner, PhD

    Simone was a professor of sport psychology enjoying a trip through Mexico when symptoms became too serious to ignore.  POTS was just one of many symptoms (many were gynecological) and she ultimately learned she had multiple compression syndromes including May Thurner Syndrome, for which she received a stent, and Nutrcracker Syndrome, for which she underwent a renal autotransplant surgery to move her kidney.  After 7 surgeries in 2 years, Simone feels she got her life back, and has created The Nu

  • May 18 · 59 min

    All about IV Infusions with Betsy Harmon, RN, CRNI, CPUI, VA-BC

    Betsy Harmon, RN, CRNI, CPUI, VA-BC has been an infusion nurse for over 20 years and runs the Alaska Infusion Center in Anchorage, Alaska, where she oversees and administers all types of infusions to a wide variety of patients.  In this episode she shares the many factors that go into safe and effective infusions, what infusion nurses are looking for and thinking about as they care for infusion patients, what patients can do to help infusions go more easily, and answers listener questions about

  • May 10 · 29 min

    Diaries with Amy on horses, family fun, and spending over half her life with POTS

    Amy is a mom and equestrian from North Carolina who has now spent over half her life with POTS.  In this episode she shares how she finished high school (early), has enjoyed horses throughout periods of being able to ride or not being able to ride, her favorite POTSy activities, her TikTok videos (see them on TikTok at @amymarieeee00), her favorite quick meal, and so much more.   If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, d

  • May 2 · 37 min

    Dr. Sally Daganzo on eating disorders, physical drivers of mental health and more

    Dr. Sally Daganzo is a board-certified internal medicine physician with advanced training in psychiatry, eating disorders and functional medicine. She has a private practice in San Rafael California and also offers telemedicine in several states.  In this episode she discusses her approach to treating complex patients, the mental-physical health intersection, eating disorders and what made her decide to start her own clinic, whose website is https://www.sallydaganzomd.com/ If you liked this epis

  • April 25 · 17 min

    Elli (from ep 65) on new diagnoses and MALS surgery

    Elli from episode 65 is back to share what she wishes she'd known sooner after her 2-year ordeal that eventually resulted in several new diagnoses and surgery for MALS (median arcuate ligament syndrome).  You can find Elli on most social media at potsie.life. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate Tell us what you thi

  • April 19 · 54 min

    The Long COVID Treatment Guide with Jen Curtin, MD and Charlie McCone

    Dr. Jen Curtin is the Medical Director and Co-founder of RTHM Clinic, which specializes in complex chronic conditions via their clinic, telemedicine services, Intelligence platform, medication access program and other innovative services. She is also a former complex chronic illness patient herself.  Charlie McCone is a San Francisco based Long Covid patient advocate and non-profit professional with a background in marketing, communications, fundraising, and organizing. He has worked in the fiel

  • April 14 · 39 min

    Aryn on athletics, adapting and advocating for oneself

    Aryn was a serious college athlete when her POTS developed, and in this episode she shares how she has adapted and how despite having world class cardiology care for her symptoms, her diagnosis would have been missed if it hadn't been for another POTS patient recognizing her symptoms and then Aryn's specifically asking for a tilt table test. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to suppor

  • April 7 · 39 min

    Attorney Krysti Monaco on winning children's social security benefits

    Krysti Monaco helps families apply for disability benefits when their children are too disabled to work.  In this episode she describes the available programs, application process, challenges, pitfalls, important deadlines and more.  Krysti's law firm offers free consultations, daily YouTube videos, a free podcast and their website is here.   If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to suppo

  • April 1 · 52 min

    Cell membrane health with Dr. Melanie Stein on Mast Cell Matters with Dr. Tania Dempsey

    Dr. Melanie Stein, ND is a licensed Naturopathic Physician in Portland, Oregon and a recognized leader in Cell Membrane Therapy for the treatment of complex and chronic illness. She specializes in restoring health at the cellular level—repairing and revitalizing cell membranes to improve energy production, enhance detoxification, and restore healthy communication between cells. In this episode, she and Dr. Dempsey discuss why cell membrane health is relevant to MCAS and many other chronic illnes

  • March 22 · 34 min

    Elizabeth on her comeback and book: The Toll it Took

    Elizabeth was a teen athlete when she first became bed bound with POTS and several other conditions including narcolepsy, epilepsy and gastroparesis.  After 5 years of struggling to be heard or helped, and wondering if the struggle was worth it, she is now back in school, working full time, and becoming the kind of healthcare professional she wishes she'd had.  AND she has written a book -- The Toll it Took -- about her experiences!  Her advice:  "Even if you don't feel like it, keep going." If

Showing 21–30 of 30 episodes