

Anonymous #50 — Is It Okay to Have Made Peace With Dying When They Need You to Stay?
Content note: This conversation includes discussion around a terminal diagnosis and a period of chronic suicidality. If you aren't in the right space for this today, that's ok. This week's caller is the other half of last week's conversation, the one living inside the diagnosis instead of beside it. They have a former colleague who once opened a tense workplace meeting with three words: I believe everybody. That idea has stuck with them ever since, and it shapes how they think about death now, including their partner's hope that some part of them will linger like the wind. The seizures and fainting started in their twenties. Doctors initially suspected a rare blood cancer. A blood specialist eventually landed on the real answer: a rare, idiopathic bone marrow disorder, diagnosed in 2018 with an initial timeline of three to five years. There's an irony they've sat with. As a teenager, they spent years convinced they wouldn't live past 40, a belief tied to a period of chronic suicidality they've since moved past. Getting an actual terminal diagnosis as an adult, after growing to love the life they'd built, made that old certainty something they never wanted to be right about. They've done two rounds of grueling experimental treatment, daily injections for six weeks with isolation before, during, and after. The first happened in the early months of COVID, while on immunosuppressants that made a single infection potentially fatal. Neither round was for themselves. Both times, it was for the people who weren't ready to lose them yet. They talk about the work of their life in specific terms: living in pursuit of liberation for the people they love, so that when their time comes, the work feels done. Most people in their life don't bring up their dying. One friend changes the subject every time it comes up. Another, a rabbi, is one of the few who can sit in it with them comfortably. In this conversation: A colleague's three words that shaped how our caller thinks about death and belief The years-long path to an idiopathic bone marrow diagnosis, and the doctors who got it wrong before one got it right A teenage belief about mortality that turned out to be true for reasons no one could have guessed Choosing experimental treatment for other people's sake, not their own What it means for our caller to feel like their work is done Book recommendations: They Can't Kill Us Until They Kill Us by Hanif Abdurraqib and Grief Is for People by Sloane Crosley — see the full list of Anonymous Book Recommendations here. Video Episode: If you'd like to watch this conversation instead of just listening, you can find the video version on YouTube. About When We Die Talks: When We Die Talks is a podcast built around anonymous conversations about death, loss, and how contemplating mortality shapes the way we live. If you’re new here, start with the Episode Guide. It’s designed to help you find conversations that match where you’re at—curiosity, grief, hesitation, or openness. Stay Connected 🌐 Website: whenwedietalks.com 📰 Substack: When We Die Talks 📸 Instagram: @whenwedietalks ▶️ YouTube: When We Die Talks ✉️ Email: zach@whenwedietalks.com Want to share your thoughts? Leave a voicemail at 971-328-0864 and share what you believe happens when we die. Messages may be featured in a future episode. If you’d like to have a full conversation, you can apply to be an anonymous caller at whenwedietalks.com.
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