The Long Haul with Summer

The Microvascular Research Foundation

On The Long Haul with Summer we are amplifying patient voices, talking about groundbreaking approaches to healthcare and challenging the limits of traditional medicine.

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English

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Yesterday · 1 hr 21 min
John Armstrong’s Long COVID Journey: Lyme Disease, Vein Compression & Finding the Right Doctor
After COVID, John Armstrong’s health kept getting worse. Severe fatigue, brain fog, memory problems, and crashes began affecting his work, his family, and his ability to be the active father and provider he had always been. After seeing doctor after doctor without getting a clear explanation for everything he was experiencing, John was nearly ready to stop looking. Then his wife convinced him to try one more doctor. That appointment changed the direction of his care. John shares his experience being treated for Long COVID, later discovering Lyme disease and iliac vein compression, undergoing treatment and stenting, and gradually seeing parts of his life return. He and Summer also talk about the emotional side of chronic illness, losing trust in your own body, grieving the person you used to be, and why finding the right people to keep asking questions can matter so much. Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
September 30 · 1 hr 17 min
Doctors Gave Her Dad Two Options: Lung Transplant or Hospice. She Went Looking for a Third.
Aimee Knight watched her once-active father go from exercising and traveling to requiring significant oxygen support as his health rapidly declined. Eventually, his family was given two options: lung transplant or hospice. In this episode of The Long Haul with Summer, Aimee shares why she refused to stop searching for answers, how her family crossed state lines to pursue another path, and what happened after her dad began treatment. She and Summer also discuss the realities of advocating for a seriously ill family member, the importance of informed consent when conventional options have been exhausted, and the meaningful time her family was able to spend together along the way, including a trip to Las Vegas that once seemed impossible. Although his story did not end the way his family hoped, Aimee explains why she still sees his journey as a story of hope, perseverance, and a legacy that continues through the Microvascular Research Foundation. Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
September 23 · 26 min
Why You Crash After a Good Day With Long COVID | PEM Explained
You wake up feeling good, finally have some energy, and try to catch up on everything you haven’t been able to do. Then, hours or even days later, you crash. In this episode of The Long Haul with Summer, Summer explains post-exertional malaise (PEM), why it can be delayed, and why it can feel so different from ordinary fatigue. Drawing from her own experience with Long COVID, Summer talks through the many forms of exertion that can contribute to a crash, including physical activity, mental work, socializing, emotional stress, travel, errands, and even several smaller activities adding up throughout the day. She also explains the energy envelope, Spoon Theory, pacing, and the boom-and-bust cycle that can happen when you use more energy than your body can currently tolerate. Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
September 16 · 1 hr 17 min
The Hidden Vein Problem Behind Long COVID, POTS, and Pelvic Pain
What if symptoms like brain fog, fatigue, heart racing, pelvic pain, and orthostatic intolerance have a vascular connection that is being overlooked? In this episode of The Long Haul with Summer, Summer sits down with interventional radiologist Dr. Brooke Spencer to explore pelvic venous disease, iliac vein compression, and the emerging research into their potential connection with Long COVID and POTS. Dr. Spencer explains why the venous system has historically received less attention than the arterial system, how impaired venous return and venous pooling may contribute to symptoms across multiple organ systems, and why vascular compression can sometimes be missed on conventional imaging. She also discusses ongoing research, the limitations of what is currently known, and why better data, education, and collaboration are essential as physicians work to understand these complex patients. Summer also shares her own experience after an earlier scan was read as normal, and why looking at imaging in the context of the patient’s symptoms can make such a significant difference. Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
September 9 · 54 min
Why Pushing Through Long COVID Can Make You Worse | Dr. Robert Groysman
Long COVID patients are often told to push through their symptoms, build their endurance, or keep going until their bodies adjust. But for patients experiencing post-exertional malaise, pushing past their limits can lead to an even harder crash. In this episode of The Long Haul with Summer, Dr. Robert Groysman joins Summer to explain the connection between post-exertional malaise, mitochondrial dysfunction, oxidative stress, and the energy problems many Long COVID patients experience. Dr. Groysman shares how his own experience with Long COVID led him to look beyond traditional medical specialties for answers. He explains why PEM is different from ordinary fatigue, why physical activity is not the only thing that can trigger a crash, and why pacing can be such an important part of protecting a patient’s baseline while working toward recovery. Summer and Dr. Groysman also discuss why standard rehab can sometimes backfire, the challenges of identifying mitochondrial dysfunction, and why treating Long COVID often requires looking at multiple systems rather than addressing symptoms one at a time. Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
July 22 · 1 hr 20 min
I Treated Iliac Vein Compression for Years. Then I Became the Patient.
Summer had sent countless patients to Denver for iliac vein stents. She had watched the procedure, shadowed the team, and explained iliac vein compression in clinic more times than she could count. Then her own name appeared on the schedule. After an earlier scan was read as normal, Summer later learned she had severe iliac vein compression and Nutcracker syndrome. In this personal return episode of The Long Haul with Summer, she shares the symptoms that changed her daily life, what it was like to undergo the procedure herself, and the improvements she noticed within days. Recovery was not a straight line. Summer also opens up about the difficult MCAS flare that followed, the slow process of learning to trust her body again, and how becoming the patient changed the empathy and perspective she will carry into caring for others. Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
July 8 · 1 hr 1 min
The Gut Symptoms Doctors Keep Missing in Long COVID
What if the gut symptoms many Long COVID patients experience are not just IBS, anxiety, or “functional” problems? In this episode, Dr. Vaughn interviews gastroenterologist Zach Spiritos about the overlooked connection between Long COVID, mast cell activation, gut barrier dysfunction, food reactions, dysautonomia, and chronic GI symptoms. They discuss why traditional scopes and imaging often fail to explain what patients are feeling, how COVID may disrupt the gut and immune system, and why symptoms that are often dismissed as stress or anxiety may have a deeper biological explanation. This conversation also explores IBS, MCAS, motility issues, microscopic colitis, inflammatory bowel disease, GLP-1 medications, probiotics, prebiotics, and why asking “why did this happen?” may be one of the most important questions in medicine. Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
May 4 · 6 min
Why I’m Taking a Step Back | Summer’s Long COVID Update
On this deeply personal update, I'm opening up about why I’ve been away—and what’s really been happening behind the scenes. After reaching the best shape of my life, everything took an unexpected turn. What started as metabolic issues quickly spiraled into something much more complex. From new autoimmune concerns to a COVID reinfection, I’ve been dealing with severe fatigue, brain fog, and debilitating crashes that have completely changed my day-to-day life. After months of testing, treatments, and trying to piece things together with my medical team, we finally have some answers—but they come with new challenges. I’m now facing significant vascular complications and heading to Denver for a procedure that I hope will put me back on the path to healing. This episode is about transparency, resilience, and the reality of living with long COVID. I’ll also be documenting this next phase of my journey—sharing what I learn, what helps, and what recovery really looks like. Thank you for being here, for your support, and for walking this journey with me. More updates soon. Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
April 21 · 1 hr 17 min
Your Labs Are Normal, So Why Are You Still Sick? | Dr. Ben Edwards
When patients are told their labs are “normal” but they still feel sick, where do they turn next? In this episode of The Long Haul with Summer, Summer talks with Dr. Ben Edwards about root-cause medicine, why symptom management often misses the bigger picture, and how issues like inflammation, gut health, mitochondria, and lifestyle can play a major role in healing. This is a thoughtful conversation for patients and providers looking beyond the standard model of care. Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
April 14 · 43 min
What to Eat with Long COVID | Anti-Inflammatory Diet Tips That Actually Help
In this episode of The Long Haul with Summer, Summer shares what to eat with Long COVID and how an anti-inflammatory diet may support healing, energy, and overall recovery. She walks through grocery store tips, the mito diet, foods to prioritize, foods to avoid, meal ideas, snack options, and simple ways to lower inflammation through everyday eating. Whether you’re dealing with Long COVID symptoms or looking for practical nutrition guidance, this episode offers a helpful starting point. Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
April 7 · 1 hr 12 min
He Thought He Was Going Crazy — It Was Long COVID
After COVID, Mitch went from running his landscaping business and living an active life to feeling like he was losing his mind. For nearly three years, he battled crushing symptoms, endless doctor visits, normal test results, and the fear that no one believed what he was going through. Eventually, he learned it wasn’t “all in his head” — it was Long COVID. In this episode of The Long Haul with Summer, Mitch and Michelle share the heartbreaking decline, the medical dismissal, and the treatment that finally helped him get his life back. Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
March 31 · 1 hr 18 min
Why So Many Long COVID Patients Are Still Being Dismissed
In this episode of The Long Haul with Summer, Summer sits down with Dr. Vaughn and cardiologist Dr. Alexis Cutchins to unpack why so many Long COVID patients are still being dismissed. They explore the overlooked links between Long COVID, POTS, MCAS, venous disease, and microclotting—and why listening to patients is often what leads to real answers. This is an eye-opening conversation about medical blind spots, innovative care, and the doctors working to connect the dots for patients who have been told nothing is wrong. Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
March 24 · 1 hr 16 min
Doctors Dismissed Her for Months — Then They Found Lung Scarring
After working as an ER nurse through the COVID pandemic, Rachel Lowry never expected to become the patient herself. In this episode of The Long Haul with Summer, she shares how months of coughing, shortness of breath, crushing fatigue, and worsening symptoms were repeatedly brushed aside—until one chest X-ray finally revealed significant lung scarring. Rachel opens up about the fear, frustration, and medical dismissal she faced, what it was like to know something was deeply wrong while being told everything looked normal, and how getting the right answers changed the course of her journey. This is a powerful conversation about Long COVID, lung damage, persistence, and why patients need doctors who will truly listen. Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org
March 17 · 38 min
Doctors Said Her Tests Were Normal — She Ended Up Bedridden
After getting sick and hearing again and again that her tests were “normal,” Olivia was left with no real answers—only worsening symptoms, intense fatigue, chest pain, a racing heart, and months spent bedridden. In this episode of The Long Haul with Summer, she shares how her life changed after COVID, how traditional doctors repeatedly dismissed her symptoms as anxiety, and how finding the right testing and care finally helped her begin getting her life back. Olivia’s story is a powerful look at Long COVID, medical dismissal, microclotting, recovery, and why patients need doctors who will truly listen.
March 10 · 1 hr 13 min
Doctors Said “Learn to Live With It” — They Missed the Real Problem
Andrea was a healthy, active mom, nurse, and school worker when everything suddenly changed. What started as strange arrhythmias and exhaustion turned into crushing fatigue, dizziness, swelling, brain fog, and episodes so severe she could barely make it through a grocery store without help. After months of ER visits, cardiology workups, normal tests, and being told to just live with it, Andrea finally found doctors willing to look deeper. In this episode of The Long Haul with Summer, she shares her frightening health collapse, the vascular issues that were ultimately discovered, and the treatment path that began giving her life back.
March 3 · 50 min
Long COVID Treatment: Why You Feel Worse Before You Feel Better
Starting Long COVID treatment can feel overwhelming—especially when your first visit comes with a busy day of testing, labs, education, and a brand-new plan to follow. In this solo episode of The Long Haul with Summer, Summer walks through what that first appointment typically looks like, how the care team builds a personalized roadmap, and why it’s common to feel a little worse before you feel better as your body begins healing and adjusting to new medications, rest, hydration, and nutrition changes. She shares practical tips for managing brain fog, staying organized, pacing exercise, improving sleep, and avoiding setbacks—plus the mindset of grace, patience, and perseverance it takes to make progress that isn’t always linear. Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
February 24 · 1 hr 6 min
Four Years of Long COVID. One Appointment Changed Everything.
Ernie went from averaging 30,000 steps a day to being nearly bedridden after 2021—failing lung tests even with an inhaler, battling crushing brain fog, constant shaking, and being told by doctor after doctor that nothing was wrong. After four years of searching for answers, one appointment changed everything. In this episode of The Long Haul with Summer, Ernie shares how he finally found a care team that listened, built a clear plan, and supported him through treatment from out of state—then accelerated it on-site in Birmingham with adjunct therapies like HBOT, red light therapy, SoftWave, and EBOO. Today, his pulmonary function tests are normal, and he’s back to running, hiking, and rebuilding the life Long COVID stole—with a message of faith, persistence, and hope for anyone still stuck in the cycle of dismissal. Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
February 17 · 1 hr 10 min
COVID Isn't Just a Lung Disease—What the Microscope Revealed
COVID isn’t just a lung disease—and under the microscope, the blood reveals a very different story.In this episode of The Long Haul with Summer, Summer sits down with world-renowned physiologist Dr. Resia Pretorius to discuss what her team discovered: extreme platelet hyperactivation, vascular damage, and amyloid-like clotting structures often referred to as “microclots.” They unpack why many Long COVID patients can have “normal” standard labs while still feeling profoundly unwell, why microscopy is so validating, and what it will take to move this research into mainstream care.Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/
February 10 · 1 hr 19 min
35 Doctors Said His Son Was 'Fine.' Then We Looked at His Blood.
35 Doctors. 3 Children's Hospitals. One "Medical Jailbreak." Kyle Cooper was a nationally ranked triathlete until he was found collapsed on his bedroom floor. He explains how severe sensory overstimulation forced him into a "blackout room," wearing noise-canceling headphones just to survive the day. For years, every specialist called his symptoms "preposterous" or "just dehydration." They were wrong. Colby Cooper shares the heart-pounding moment he pulled his son out of the hospital to find the truth. Discover how Dr. Jordan Vaughn and the Microvascular Research Foundation (MVRF) identified the 92% vein blockage and micro-clots that traditional medicine missed. "This experience has made us lifelong supporters and advocates for the Microvascular Research Foundation. This is our new calling." — Colby Learn more about the Microvascular Research Foundation and how you can help at: https://mvresearch.org/
February 3 · 56 min
This Medical Practice Built a Pharmacy Inside the Clinic—Here's Why
Discover how one medical practice is transforming patient care by building a pharmacy right inside their clinic. Pharmacist Scherry shares her journey working with an integrated healthcare team, providing same-day prescriptions, compounded medications, and expert guidance on supplements and off-label therapies. From streamlining care to supporting patients through the pandemic, see how this unique setup improves outcomes, builds trust, and redefines what patient-centered healthcare can look like. Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/

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