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Retina UK

Retina UK

Retina UK supports people affected by inherited progressive sight loss and invests in medical research to ensure that people an lead a fulfilling life, now and in the future.

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  • 20 episodes
  • Avg 32 min
  • English

Episodes 20

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  • Wednesday · 59 min

    Look Forward - Autumn 2026 (issue 191)

    This is the audio edition of the Retina UK Newsletter, Look Forward - Autumn 2026 (Issue 191). You can download a copy in PDF and Word format on the Retina UK website: ⁠⁠https://retinauk.org.uk/resources⁠⁠. Contents in this edition are as follows: We're counting the days until our conferences Free CPD-accredited conference for professionals Retina UK Annual Conference Nutrition and inherited sight loss, promise vs proof Thank you Challenge yourself, change lives Research news round-up Volunteering, technology and community: Making a difference at Retina UK Bringing us closer to effective treatments Living life in full colour: Meet Tilly Dowler Dates for your diary PAID ADVERTISEMENT: Turn night into day - Luna PAID ADVERTISEMENT: Ran-Ban | Meta Wayfarer Donate to Retina UK this autumn

  • July 31 · 55 min

    Webinar: living well with inherited sight loss: a young adults perspective

    In this session, our speakers will explore what it means to navigate early adulthood with a visual impairment, offering insights into key areas of life including hobbies, friendships, travel, employment and being involved with Retina UK. This is a opportunity to hear real stories, learn from lived experiences, and gain practical perspectives on building independence, maintaining connections, and embracing opportunities. We will also be joined by Robert Quinn, CEO of MakeSense. MakeSense is developing the worlds first ultra precise navigation technology for people with sight loss. Whether you are personally affected by inherited sight loss, supporting someone who is, or simply looking to better understand these experiences, this webinar promises to be informative and uplifting. What to expect: Personal stories from young adults living with inherited sight loss Insights into everyday life, from social connections to travel Perspectives on getting involved with Retina UK An opportunity to feel inspired and connected

  • July 31 · 40 min

    Impact Report 2025

    Find out more about the difference we made in 2025. This report is also available in PDF and plain text (Word) formats on the Retina UK website: ⁠RetinaUK.org.uk/resource/impact-report-2025/

  • July 29 · 36 min

    Meet the professionals: Ophthalmologist

    In this episode of Meet the Professionals, Eve speaks with Professor Marcela Votruba, Professor of Ophthalmology at Cardiff University and Consultant Ophthalmologist at University Hospital Wales, where she leads a specialist genetic eye clinic. Together, they explore the vital role ophthalmologists play in diagnosing and supporting people living with inherited retinal diseases. Marcela explains the differences between ophthalmologists and optometrists, how referrals work, what happens during the diagnostic process, and the range of tests used to diagnose inherited retinal conditions. The conversation also covers what support is available following diagnosis, why some patients are discharged from regular ophthalmology care, when re-referral may be appropriate, and how ophthalmologists collaborate with researchers, genetic counsellors, Eye Care Liaison Officers (ECLOs), rehabilitation specialists and other professionals. This episode offers valuable insight for anyone living with inherited sight loss, supporting a loved one, or wanting to better understand the clinical care pathway and the professionals involved.

  • July 22 · 11 min

    E-Newsletter July 2026

    Our monthly e-Newsletter featuring the latest updates from Retina UK.

  • June 16 · 30 min

    Podcast: Meet the professionals: QTMSI

    Our latest Meet the Professionals podcast is here, and this month we’re joined by Danielle Wise, a Qualified Teacher of Multi Sensory Impairment (QTMSI). Danielle supports children and adults with both sight and hearing loss, helping them communicate, learn, and navigate the world with confidence. In this episode, we explore what MSI really means, how support is tailored to each person, and why early intervention and specialist guidance can make such a powerful difference. A must‑listen for anyone interested in sensory support, education, or lived experience of sight loss. Listen now.

  • May 29 · 56 min

    Look Forward - Summer 2026 (issue 190)

    This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2026 (Issue 190). You can download a copy in PDF and Word format on the Retina UK website: ⁠https://retinauk.org.uk/resources⁠. Contents in this edition are as follows: Conference invitation - Tina Garvey Hats off to our incredible volunteers - Tina Garvey Tickets are selling fast for our Gala Dinner Finding connection through stories Book your place for our Annual Conference Free CPD-accredited conference for professionals Paid advertisement: MiniVision2+ Paid advertisement: Optaro XL #TeamRetinaUK makes a splash Research news round-up Dates for your diary 50th anniversary year round-up Finding purpose through community Start bidding today! Annual General Meeting notice Thanks to you Donate to Retina UK this summer

  • May 22 · 31 min

    Podcast: Meet the professionals: Low vision specialist

    In the latest episode of our Meet the Professionals podcast, we speak with Louise Gow, a low vision specialist and the Head of Eye Health, Optometry and Low Vision at RNIB. Louise has dedicated her career to helping people make the most of their remaining vision and ensuring that low vision services across the UK are effective, accessible and person‑centred. During the conversation, Louise explains what low vision support involves, how assessments work, and the practical tools and strategies that can make a real difference to everyday life. She also discusses how low vision specialists collaborate with other professionals across the sight loss sector, highlights common misconceptions, and shares her thoughts on emerging developments in the field. This episode offers valuable insight for anyone living with inherited sight loss, as well as for family members, friends and professionals who want to better understand the role of low vision support.

  • May 20 · 19 min

    Podcast: Meet the Professionals: Rehabilitation Specialist

    In this episode of Meet the Professionals, Lauren speaks with Richard Bounds, Vision Rehabilitation Specialist and CEO of the Rehabilitation Workers Professional Network (RWPN). Richard shares his journey into the profession, explains the vital role rehabilitation specialists play in supporting people with sight loss, and explores how RWPN champions and strengthens the workforce behind this service. Together, they discuss what rehabilitation support looks like in practice, when someone might be referred, how goals are set, and why personalised, flexible support can make such a difference for people living with inherited retinal conditions. Richard also reflects on the future of the profession and offers advice for anyone feeling unsure about reaching out for help. Whether you’re living with sight loss, supporting someone who is, or simply want to understand more about the sector, this episode offers valuable insight into the people and expertise behind rehabilitation services.

  • April 23 · 58 min

    Webinar: Optician appointments explained: what to ask and why it matters

    Understanding what happens during an optician appointment can make a real difference for people living with inherited sight loss. In this webinar, taking place on Wednesday 22 April at 7pm on Zoom, we’ll explore the vital role opticians play - from early detection and regular monitoring to low‑vision support and onward referrals. We’re delighted to be joined by Ashish Chokshi, Principal Optometrist, Optometry Lead for Medical Retina, Moorfields Eye Hospital NHS Foundation Trust, and a community optician practice owner. Ashish will share his clinical and community‑based insights into how opticians support people with inherited retinal conditions and what you can expect during appointments. We will also be joined by two of our volunteers with lived experience, who will also share what has helped them feel more confident in clinic settings, as well as why some people may feel hesitant about attending. This webinar is designed to give you practical insights, reassurance and a clearer understanding of why routine eye care matters.

  • April 17 · 26 min

    Podcast: Meet the professionals: ECLO

    In the latest episode of Meet the Professionals, we sit down with Kate, an d Eye Clinic Liaison Officer (ECLO), to explore the vital role ECLOs play in supporting people through every stage of their sight loss journey. From helping individuals navigate the emotional impact of diagnosis to offering practical guidance on registration, benefits, and local services, ECLOs are a crucial bridge between clinical care and everyday life. Kate shares her path into the sight loss sector, what a typical day looks like, and the many ways she works alongside clinicians, families, and support organisations to ensure individuals with sight loss get the support they need. Whether you’ve met an ECLO before or are hearing about the role for the first time, this conversation offers insight, and practical advice for anyone living with inherited sight loss or supporting someone who is. If you’d like to learn more about ECLO support or the services mentioned in this episode, you can contact the Retina UK Helpline on 0300 111 4000 or helpline@RetinaUK.org.uk. Our volunteers all have lived experience of inherited sight loss and are here to help.

  • March 26 · 19 min

    Meet the professionals: Rehabilitation Specialist

    In this episode of Meet the Professionals, Lauren speaks with Richard Bounds, Vision Rehabilitation Specialist and CEO of the Rehabilitation Workers Professional Network (RWPN). Richard shares his journey into the profession, explains the vital role rehabilitation specialists play in supporting people with sight loss, and explores how RWPN champions and strengthens the workforce behind this service. Together, they discuss what rehabilitation support looks like in practice, when someone might be referred, how goals are set, and why personalised, flexible support can make such a difference for people living with inherited retinal conditions. Richard also reflects on the future of the profession and offers advice for anyone feeling unsure about reaching out for help. Whether you’re living with sight loss, supporting someone who is, or simply want to understand more about the sector, this episode offers valuable insight into the people and expertise behind rehabilitation services.

  • February 26 · 1 hr 5 min

    Look Forward - Spring 2026 (issue 189)

    This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2026 (Issue 189). You can download a copy in PDF and Word format on the Retina UK website: https://retinauk.org.uk/resources.Contents in this edition are as follows: A heartfelt thank you for standing with us (Tina Garvey) Staying connected: Small changes, big impact Join us for the grand finale to our 50th anniversary year! Research news round up Two journeys, one desert Volunteer spotlight: Building peer support in the South-West Stepping onto the career ladder Gene therapy to restore and maintain vision PAID ADVERTISEMENT: Turn night into day – Luna PAID ADVERTISEMENT: New! Optaro® Thank you Have fun and make a difference for people with inherited sight loss Give the gift of hope through a regular donation Dates for your diary Donate to Retina UK this spring

  • February 25 · 20 min

    Podcast: Meet the Professionals - Genetic Counsellor

    In this opening episode of our Meet the Professionals series, Lauren speaks with Sian, a Genetic Counsellor supporting people living with inherited retinal conditions. Together, they unpack what genetic counselling involves, how it can help individuals and families understand their diagnosis, and what to expect from the genetic testing process. Sian discusses her background, the emotional and practical support she provides, and the types of questions people often bring to their appointments. She also explains how genetic counsellors work alongside clinicians, researchers, and organisations like Retina UK to ensure people receive the information and care they need. If you’re considering genetic testing or want to understand more about the role of a Genetic Counsellor, this episode offers clear insight. You can find out more information on genetic testing here: Unlock Genetics - Retina UK

  • January 20 · 36 min

    Podcast: Steps through the sand: stories from the Retina UK Sahara Trek

    In “Steps Through the Sand: stories from the Retina UK Sahara Trek”, you’ll hear firsthand from some of our amazing trekkers who took on this once-in-a-lifetime challenge – trekking across the vast Sahara Desert to raise vital funds and awareness for people affected by inherited sight loss. Our speakers share their personal stories, memorable moments, and the highs and lows of life in the desert, from the blazing dunes to the powerful sense of teamwork and purpose that carried them through. Whether you’re curious about taking on your own adventure, want to relive the journey, or simply love hearing uplifting stories of courage and community, this is an event not to miss.

  • Dec 19, 2025 · 35 min

    Podcast: Eye tests: find out more about what to expect at appointments

    In this Retina UK podcast, Research Development Manager Kate Arkell is joined by Laura Taylor, Research Optometrist with the Oxford Eye Research Group, and Randa Li, Ophthalmologist at Moorfields Eye Hospital, to explain the wide range of tests used in the diagnosis and monitoring of inherited retinal diseases (IRDs). Across the discussion, Laura and Randa address common misconceptions, practical tips for preparing for appointments, and the importance of regular monitoring. The episode aims to give listeners the knowledge and confidence to understand their test results and engage actively in their care.

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