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Dementia Discussions

Barbara Hament

A monthly podcast about dementia. Join your host, Barbara Hament every 2nd Tuesday of the month, as she interviews medical professionals, caregivers, and various experts on how to better understand and cope with this challenging and complex disease.

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23 episodes
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Avg 48 min
English

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S4 · E16
October 13 · 26 min
Medical Aid in Dying: Choice, Dignity, and the End of Life
Medical aid in dying, also known as MAID, is an end-of-life option that many people have questions about—and there are also a lot of misconceptions surrounding it. After my recent conversation with Ana Safarian of Olympia Hospice Care, I wanted to invite her back to help me better understand what medical aid in dying really means, who may qualify, and what patients and their families can expect from the process. Ana and I talk about patient choice and dignity at the end of life, the role of hospice care and physicians, and what happens when family members don’t agree with a loved one’s decision. We also discuss why medical aid in dying is not an option for people with dementia, the safeguards involved, and the stigma that can make these conversations so difficult. It’s a subject we don’t often talk openly about, but I think it’s an important one to understand. Episode Highlights [0:37] - I welcome listeners back and share my gratitude for our guests, caregivers, and everyone who continues to listen and share their stories. [1:22] - I introduce returning guest Ana Safarian of Olympia Hospice Care and explain what sparked my curiosity about medical aid in dying. [2:28] - What exactly is medical aid in dying, or MAID? Ana explains what it means and how it fits into end-of-life care. [4:00] - We talk about who may qualify for medical aid in dying, including age, residency, terminal diagnosis, and cognitive requirements—and why dementia changes eligibility. [5:00] - What happens when a patient wants medical aid in dying but their spouse or family disagrees? Ana shares what she has seen with families navigating this deeply personal decision. [5:30] - Ana walks me through the process after a patient decides they want to pursue MAID, including the conversations required with physicians. [7:17] - We discuss the time between physician conversations and why patients can choose when—or whether—they want to move forward. [8:32] - I ask Ana what patients and families can expect once the medication has been prescribed and how the hospice team supports them. [9:46] - How long does the dying process take? Ana explains why each person’s experience can be different and what she has witnessed while caring for patients. [11:00] - We talk about some of the very personal reasons terminally ill patients may consider medical aid in dying, including pain, suffering, independence, and concern about burdening their families. [12:07] - Ana describes the clarity and sense of relief she has seen in patients who have made their decision. [12:44] - Is medical aid in dying the same as suicide? We discuss that common misconception and the safeguards and support involved in the process. [13:56] - Ana explains why not every hospice agency, physician, or nurse participates in medical aid in dying. [15:32] - We discuss a question families often ask: What appears on the death certificate when someone chooses medical aid in dying? [16:39] - What happens when a patient decides it’s time? Ana explains the role of the hospice team and how personal the timing and setting can be. [17:17] - We talk about planning ahead for what happens after death, including arrangements with a mortuary or cremation provider. [17:45] - Some families want the hospice team present, while others want that time completely to themselves. Ana explains how those choices are handled. [18:30] - Having worked in hospice myself, I ask what the dying process looks like physically and whether patients experience some of the changes and distress we sometimes associate with the end of life. [19:22] - We discuss the requirement that the medication be self-administered and what that means for the patient and hospice team. [20:24] - Ana talks about the peace and relief she has witnessed in patients and how the process may differ depending on a patient’s physical abilities. [21:29] - We talk about how the hospice team prepares patients and families beforehand and walks them through what to expect. [22:19] - Ana shares how listening to a patient describe living with severe pain changed her own perspective on medical aid in dying. [23:09] - A touching story about a patient who wrote a Google review before his death brings us back to one of the biggest themes of our conversation: patient choice. [23:44] - I share a resource for listeners who want to learn more, and Ana talks about the information and referrals available to patients and families. [24:42] - Ana reminds listeners that people can reach out with questions simply to learn more about medical aid in dying. Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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S4 · E15
September 8 · 37 min
What Hospice Really Provides for Families Facing Dementia
Hospice can be a difficult word for families to hear. We often think it means giving up, but what if hospice is really about comfort, dignity, quality of life, and bringing more support to both the person who is dying and the people caring for them? In this episode, I’m joined by Ana Safarian, administrator of Olympia Hospice Care, for a conversation about what hospice actually looks like and how much support can be available to families. We talk about who may qualify for hospice, Medicare coverage, medications, physical and occupational therapy, medical equipment, nutrition and swallowing concerns, continuous care, and the difficult decisions families face as a loved one approaches the end of life. If you’re caring for someone with dementia or wondering whether it may be time to consider hospice, I hope this conversation gives you information that makes the process a little less frightening and a lot more understandable. Episode Highlights [0:46] - Welcoming you back to Season 4 of Dementia Discussions and sharing my gratitude for our guests, listeners, and caregivers. [1:21] - Introducing Ana Safarian of Olympia Hospice Care and starting with the basics: What exactly is hospice, and who qualifies? [2:30] - Understanding hospice as a Medicare Part A benefit and looking at some of the changes—such as weight loss, decreased eating, increased sleeping, and repeated infections—that may indicate someone could qualify. [4:41] - Discovering just how many services hospice may be able to bring into the home, including podiatry, physical therapy, occupational therapy, and speech therapy. [7:17] - Looking at hospice coverage beyond Medicare Part A, including Medicaid/Medi-Cal, private insurance, and situations where families may pay out of pocket. [8:36] - Can someone receive hospice and still be a full code? We discuss DNR decisions, life-sustaining treatment, and why accepting the end of life is often a process for the entire family. [10:56] - The hospice team approach: how social workers, chaplains, medical professionals, equipment, supplies, and medication support can all come together around the patient and family. [12:06] - What happens to a person’s medications after entering hospice—and why comfort care doesn’t necessarily mean immediately stopping medications. [13:17] - Treating UTIs, pneumonia, wounds, fluid retention, and other medical concerns while keeping a patient comfortable and, whenever possible, out of the hospital. [16:16] - Where can someone receive hospice? We talk about receiving services at home, in assisted living, and in other care settings. [16:30] - What happens when a family wants to return to the hospital for additional testing or treatment after choosing hospice? [19:51] - Providing IV fluids at home and why avoiding unnecessary hospital trips can be especially important for people living with Alzheimer’s disease or dementia. [20:45] - Facing one of the hardest parts of hospice: accepting that death is coming while still wanting more time with someone we love. [22:40] - Nutrition at the end of life, including supplements, declining appetite, force-feeding concerns, aspiration, and recognizing how the body’s needs change. [23:48] - Swallowing difficulties, bedside swallow evaluations, food consistency, thickener, and ways families can help reduce aspiration risks. [25:38] - What is a hospice comfort pack? Ana explains how medications and oxygen can be kept available in the home when symptoms arise. [27:24] - Understanding continuous care and when a hospice patient may need around-the-clock skilled nursing support during the active dying process. [30:16] - Why hospice needs to be appropriate for the patient—and how having support at home can reduce stressful trips to the emergency room. [31:16] - The unique burden dementia caregivers face when their loved one can no longer participate in end-of-life decisions. [32:20] - Shifting the conversation from quantity of life to quality of life and asking what truly matters for the person we love. [32:43] - Ana shares a moving example of a woman who was able to reflect on her own life and make a deeply personal decision about hospice care. [33:40] - Looking ahead to another important conversation about medical aid in dying. [34:32] - Why caregivers and hospice professionals need to work together rather than viewing hospice as a team that comes in to “take over.” [36:14] - Closing the episode and inviting caregivers to share their own stories with Dementia Discussions. Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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S4 · E14
August 11 · 39 min
Love, Guilt, and the Limits of Caregiving
In this episode, I sit down with Denise Stiel, a member of my caregiver support group who is navigating an incredibly difficult chapter with her husband, Norman. Denise and Norman have been married for 61 years. He was a brilliant, accomplished attorney who graduated from UCLA at just 19, built a successful career, and deeply loved his children and grandchildren. But as Norman’s ability to manage everyday life began to change, Denise found herself searching for answers—and struggling to get the medical guidance and support she desperately needed. Denise is remarkably candid about what dementia caregiving can really look like: the repeated questions, the demands, the financial messes left behind, the guilt of not bringing a spouse home, and the exhaustion that comes from being on call 24/7. We talk about recognizing cognitive decline when someone can still test remarkably well, trusting what you see at home, navigating assisted living, setting boundaries, and what “taking care of yourself” actually means for a caregiver. Denise also shares the practices helping her stay centered as she continues to show up for Norman without losing herself in the process. Episode Highlights [0:55] - Welcoming listeners back and inviting caregivers to share their stories [1:56] - Meet Denise Stiel and hear how our caregiver connection began [2:49] - Remembering Norman before dementia and their 61-year marriage [4:48] - Denise’s frustrating search for answers and a clear diagnosis [7:15] - How serious medical crises complicated Norman’s cognitive decline [9:00] - When strong cognitive test scores don’t reflect life at home [10:42] - Looking beyond testing to changes in everyday functioning [12:08] - Denise’s health challenges and the guilt of needing more help [13:01] - Finding a care setting that can better support Norman [14:11] - The emotional challenge of hearing “I want to come home” [15:00] - How constant requests can slowly wear a caregiver down [16:00] - Balancing Norman’s independence with the need to keep him safe [17:21] - Discovering unpaid bills and changes in financial management [18:53] - Untangling years of bookkeeping, taxes, and missing financial records [21:48] - Looking back at the warning signs that were easy to miss [22:30] - Why caregivers need to trust what they’re seeing at home [23:16] - Keeping Norman connected to friends, family, and meaningful activities [25:03] - Navigating Norman’s unhappiness while knowing he needs more care [25:46] - How Denise’s children support her through difficult care decisions [27:08] - Why bringing Norman home would create another caregiving burden [28:18] - Recognizing relationship patterns and learning to hold firm boundaries [29:03] - Facing caregiver burnout and accepting what Denise can realistically manage [30:11] - What taking care of yourself really means as a caregiver [31:41] - Working through the guilt that comes with difficult care decisions [32:17] - Creating space to be Norman’s wife, not only his caregiver [33:10] - Preparing for the next move while accepting an uncertain future [35:33] - Why sometimes “no” really is a complete sentence [36:08] - Using meditation and journaling to manage caregiver stress [37:17] - Denise’s unwavering commitment to seeing Norman through this journey [38:04] - Denise’s message to other caregivers: “This too shall pass” Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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S4 · E13
July 14 · 48 min
When a Trusted Helper Becomes a Caregiver
When someone has been part of the family for years, it's only natural for their role to grow over time. A trusted housekeeper or personal assistant may begin helping with grocery shopping, transportation, meal preparation, or even personal care. But when does that evolution become a problem? And how do families know when it's time to bring in professional caregiving support? In this episode, I'm joined by Steve Barlam, CEO of JFS Care and former president of the Aging Life Care Association. Together, we unpack one of the most common situations families face as dementia and aging progress: when a familiar helper gradually becomes a caregiver without the training, protections, or support needed for the role. We discuss the warning signs to watch for, the different ways families can hire care, the legal and financial considerations many people overlook, and an innovative caregiving model designed to make quality care more affordable while better supporting professional caregivers. Episode Highlights [0:00] - Steve explains why supporting caregivers ultimately leads to better care for older adults. [1:02] - I introduce Steve Barlam and explain why this conversation is so relevant for families navigating dementia care. [2:50] - A familiar scenario: when a longtime housekeeper slowly takes on caregiving responsibilities. [6:26] - Why some families recognize the need for change while others believe everything is still working. [7:51] - When trusted helpers realize they've reached the limits of what they're comfortable or qualified to do. [8:34] - The red flags that signal it's time to rethink a caregiving arrangement. [10:15] - The safety risks that arise when someone provides personal care without proper training. [11:50] - Steve breaks down the three primary ways families hire caregivers and the pros and cons of each. [15:09] - Where services like Care.com fit into the caregiving landscape. [15:39] - Understanding agency-based care and what families receive beyond simply hiring a caregiver. [17:51] - The legal risks of paying caregivers "under the table" and why families should understand employment laws. [20:53] - Why agencies provide valuable backup support when caregivers become unavailable. [22:07] - The rising cost of long-term care and why traditional models are becoming difficult for many families. [24:28] - Steve introduces Care Family, an alternative live-in care model designed to reduce costs while improving caregiver support. [26:00] - Why investing in caregivers ultimately benefits the people receiving care. [28:47] - Who helps oversee the Care Family model and what families should expect. [30:15] - How professional caregivers can work alongside trusted housekeepers instead of replacing them. [31:55] - Why experienced caregivers notice subtle health changes that others may miss. [32:39] - Helping family members return to being daughters, sons, and spouses instead of full-time caregivers. [34:20] - Practical ways to define everyone's role without creating conflict or resentment. [36:08] - How Care Family is expanding throughout Southern California. [38:10] - Understanding the costs behind the Care Family model and why doing things legally protects everyone involved. [40:03] - Why JFS Care also offers shorter caregiving visits for families just beginning to introduce support. [43:31] - Helping older adults become comfortable with accepting care from someone new. [44:16] - The relationships that often develop between caregivers and the people they support. [45:32] - Medicare's GUIDE program and other resources that may help make care more accessible. Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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S4 · E12
June 9 · 50 min
The Long Goodbye: 15 Years of Loving My Husband Through Dementia
In this deeply moving episode of Dementia Discussions, I sit down with Mary, a beloved member of my Dementia with Lewy Body support group through the UCLA Mary S. Easton Center. Mary shares the remarkable story of her husband, Dan, and their 15-year journey through dementia—a path marked by uncertainty, resilience, heartbreak, and ultimately, peace. From the earliest signs that something was changing to navigating multiple diagnoses, difficult behaviors, hallucinations, caregiving challenges, and end-of-life care, Mary offers an honest and powerful look at what it means to love and care for someone living with dementia. Her story is one of unwavering devotion, family support, and faith in the face of unimaginable challenges. If you are a caregiver, this conversation will touch your heart and remind you that you are not alone. Episode Highlights [0:00] - Mary reflects on Dan’s final days and the profound peace that surrounded his passing. [0:46] - I welcome listeners to Season 4 and introduce Mary, a longtime member of my Lewy Body Dementia support group. [2:18] - Mary shares how she and Dan built a beautiful blended family through marriage, adoption, and foster care. [5:39] - The first signs of cognitive and behavioral changes begin appearing years before any official diagnosis. [10:38] - Mary discusses anosognosia and the challenges of caring for someone who does not believe anything is wrong. [15:13] - A devastating fall leads to further medical evaluation and a diagnosis of Lewy Body Dementia. [18:15] - Hallucinations, delusions, and the heartbreaking reality of Dan no longer recognizing home. [21:00] - Mary explains how she managed safety concerns, monitoring, and episodes of elopement. [23:08] - A 911 call and hospital visit highlight the growing difficulties of keeping Dan safe at home. [25:42] - Mary explores memory care options and shares why none felt right for Dan’s unique situation. [27:20] - The family navigates alcohol use, medication concerns, and finding practical ways to maintain peace. [33:56] - Despite interventions, Dan’s symptoms continue to progress and his personality changes become more pronounced. [35:22] - New behaviors emerge as frontotemporal dementia symptoms begin appearing. [37:36] - Hospice care enters the picture as Dan stops eating and drinking. [38:46] - Mary describes the family's final week together and the gift of meaningful goodbyes. [40:30] - Dan’s peaceful passing at home surrounded by love and family. [43:12] - Mary reflects on the blessing of honoring Dan’s wishes and keeping him at home until the end. [44:30] - Mary shares her powerful reflections on “The Long Goodbye” and the three losses experienced through dementia. [46:30] - Faith, family, and community become the foundation that carried Mary through caregiving and grief. [47:54] - Life after caregiving: finding peace, healing, and moving forward after loss. [48:26] - Closing reflections on resilience, caregiving, and the strength it takes to walk this journey. Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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S4 · E11
May 12 · 45 min
How Music Unlocks Memories in Dementia Patients
Caregiving for a parent with dementia can bring moments of profound love, grief, humor, and connection — and my conversation with Laura Kanofsky captures all of it. Laura shares the story of her mother’s journey from successful entrepreneur and fiercely independent businesswoman to living with dementia, while reflecting on the emotional realities of becoming both daughter and caregiver. We also explore the extraordinary impact of music therapy in dementia care and hospice. Laura explains how music can unlock memories, create emotional connection, reduce anxiety, and offer comfort even in advanced stages of dementia. From difficult decisions about caregiving and placement to meaningful moments created through music, this conversation offers insight, compassion, and support for caregivers navigating the dementia journey. Episode Highlights [0:00] - Laura shares the emotional challenge of explaining her father’s death to her mother after dementia changed her memory and understanding. [1:00] - I introduce my longtime friend and colleague, Laura Kanofsky. [3:13] - Laura reflects on her mother’s successful career and fiercely independent spirit before dementia. [7:45] - We discuss early cognitive decline, vascular dementia, and the transition from home care to assisted living and board-and-care. [10:21] - Laura shares how dementia changed parts of her mother’s personality and behavior. [12:10] - Laura explains why a smaller board-and-care setting became the right fit for her mother. [14:59] - We talk about grief, “therapeutic truth-telling,” and her mother’s confusion surrounding her late husband. [18:20] - A conversation about friendship, community, and staying socially connected during the dementia journey. [19:20] - Laura shares how she became a music therapist and why music is so powerful for people living with dementia. [23:24] - We explore how music therapy supports memory, emotional connection, and engagement. [25:18] - Laura discusses balancing her personal role as a daughter with her professional work in hospice and music therapy. [27:35] - We talk about how music created meaningful moments of joy and connection between Laura and her mother. [30:11] - Laura explains how music therapy can encourage storytelling, reminiscence, and emotional expression. [31:56] - Laura shares experiences from her work in mental health, hospice, and autism care. [36:07] - We discuss Laura’s work with Dynamic Hospice and Palliative Care and the role of music therapy at end of life. [38:57] - Laura shares how she helps families create legacy playlists and personalized memorial music. [42:38] - We reflect on empathy, compassion, and understanding the whole person in caregiving. [45:08] - Laura and I close by reflecting on the supportive community serving older adults and caregivers in Los Angeles. Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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S4 · E10
April 14 · 51 min
A 50-Year Marriage Rewritten by Dementia
In this episode, I sit down with Dr. Donald Wiss, a retired orthopedic trauma surgeon and devoted husband, whose caregiving journey is as profound as it is heartbreaking. I first met Dr. Wiss at a small board and care here in Los Angeles, and I’ve had the privilege of seeing firsthand the love and dedication he brings to caring for his wife, Deborah, who was diagnosed with mixed vascular Alzheimer’s dementia. In our conversation, he takes us back through their incredible 50-year love story and shares how subtle memory changes slowly revealed something much more serious. We talk about what happens when life doesn’t go according to plan—when retirement dreams shift into full-time caregiving, and when love means showing up in entirely new ways. Dr. Wiss opens up about the realities of dementia, from navigating denial and diagnosis to making difficult care decisions and finding moments of connection in the midst of loss. This episode is filled with honesty, resilience, and powerful insights for anyone walking the caregiving path. Episode Highlights [00:00] - Dr. Wiss shares his daily ritual of expressing love and gratitude to Deborah [01:31] - I introduce Dr. Wiss and how we first met through caregiver support [02:23] - The beautiful backstory of Dr. Wiss and Deborah’s 50-year love story [05:11] - Early warning signs of memory loss and the gradual realization something was wrong [07:10] - A pivotal trip reveals the severity of Deborah’s cognitive decline [10:29] - Understanding anosognosia and the challenges of lack of self-awareness [12:42] - Dr. Wiss makes the life-changing decision to retire and become a full-time caregiver [16:59] - Life during COVID and the emotional intensity of caregiving at home [21:49] - Navigating daily routines, music, and finding ways to connect [22:59] - The transition to adult day care and initial resistance [25:29] - Making the difficult decision to move Deborah into memory care [28:04] - Finding the right fit: from large facilities to small residential care [31:42] - Letting go of the “fixer” mindset and accepting dementia’s reality [33:53] - The emotional toll of watching a loved one change before your eyes [37:05] - The power of resilience, acceptance, and redefining purpose [38:49] - Why saying “I love you” never stops mattering [41:59] - How relationships and support systems evolve over time [44:41] - Practical communication tips: how to speak with someone with dementia [45:15] - The heartbreak of goodbye—and how that changes over time [46:41] - Medication decisions and navigating treatment thoughtfully [49:06] - Reflections on the future of dementia care and hope for breakthroughs Links and Resources Dr. Donald Wiss’ Book: One Life, No Rehearsal: A Surgeon’s Memoir of Healing, Heartbreak, and Legacy https://www.amazon.com/ONE-LIFE-NO-REHEARSAL-Heartbreak/dp/B0FG1HL971 Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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S4 · E9
March 10 · 44 min
Letting Go of the Plan: Accepting Memory Care for a Parent
In this episode of Dementia Discussions, I’m joined by Jefferson, a member of one of my caregiver support groups, who shares the powerful story of caring for his mother as she navigates dementia. Once a vibrant entrepreneur and theater producer, his mom was always the person bringing people together—making the changes in her memory and behavior especially difficult to witness. Jefferson opens up about recognizing the early signs of cognitive decline, navigating a diagnosis, and facing one of the hardest realities caregivers encounter: realizing that bringing a loved one home isn’t always the safest option. We also talk about advocacy, memory care, and how finding the right environment ultimately brought peace of mind for both Jefferson and his mom. If you’ve ever questioned whether you’re making the right decisions as a caregiver, this conversation will resonate deeply. Episode Highlights [0:00] – Jefferson reflects on the moment he realized bringing his mom back home wasn’t a safe plan. [1:07] – I welcome listeners back to Dementia Discussions and invite caregivers to share their stories. [2:00] – Jefferson joins the show and shares the vibrant story of his mother’s life in theater, entrepreneurship, and community building. [4:48] – The first subtle signs of memory changes begin to appear—and a powerful moment during one of Jefferson’s presentations raises concern. [7:59] – After Jefferson’s father passes away, his mother’s cognitive decline accelerates while living alone. [9:45] – Jefferson describes the growing caregiving responsibilities, including managing finances and noticing changes in behavior and mood. [13:05] – Resistance to in-home help and the challenge many families face when trying to introduce outside care. [14:14] – Seeking a formal diagnosis through his mother’s primary care physician and preparing for future care needs. [18:10] – A frightening health crisis leads Jefferson to rush to Palm Desert and call emergency services. [20:09] – Transitioning from hospital care to assisted living—and learning the limitations of what assisted living can provide. [22:30] – Jefferson’s plan to temporarily move his mother back home in order to manage mounting care costs. [25:10] – Within minutes of bringing her home, Jefferson realizes the situation is not safe and that professional care is necessary. [27:22] – I share how many caregivers experience the same hope of bringing a loved one home—and why it often doesn’t work. [28:22] – Jefferson goes into full advocate mode at the hospital, pushing for a new discharge plan and appropriate care. [32:12] – The turning point: hospice and palliative support open the door to a new memory care placement. [34:45] – Jefferson describes the smaller memory care community where his mom now lives safely and happily. [36:56] – Weekly updates from staff and the relief of knowing his mother is well cared for. [38:07] – Understanding hospice and palliative services as supportive care—not only end-of-life care. [41:10] – Visiting his mom regularly and navigating the emotional reality that she’s still there—but not the same. [42:19] – The importance of caregiver support groups, friends, and family during the caregiving journey. Caregiving can feel incredibly isolating, but conversations like this remind us that none of us are alone in the journey. Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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S4 · E8
February 11 · 53 min
Reimagining Dementia Care: How the Hummingbird Project Sparks Joy, Connection, and Purpose
In this episode of Dementia Discussions, I am joined by Elizabeth Fluck and Meredith Eden of The Hummingbird Project, and what a meaningful conversation this turned out to be. If you’ve ever wondered how to truly enhance quality of life for someone living with dementia—not just manage symptoms, but spark joy—this episode is for you. We talk about the power of social connection, therapeutic engagement, and why isolation can be so detrimental, especially for seniors and those who cannot easily advocate for themselves. Elizabeth and Meredith share how their strength-based, individualized approach is transforming dementia care through creative arts, purposeful activities, and even virtual programming. You’ll walk away with practical insight and, I hope, a renewed sense of possibility. Episode Timeline [0:48] – I kick off Season 4 and reflect on the importance of community and connection for caregivers. [2:12] – Elizabeth shares how volunteering in a nursing home as a teenager led her to a lifelong passion for working with seniors. [3:55] – Meredith talks about her background in drama therapy and how she found her true calling on a memory care floor. [7:49] – We discuss why socialization is more than brain games—and why isolation is especially harmful for seniors with dementia. [10:30] – The origin of The Hummingbird Project and the need for a true “quality of life” model in elder care. [12:09] – What one-on-one therapeutic engagement actually looks like—and how specialists tailor activities to each individual. [15:41] – Beautiful examples of rediscovering talents, including harmonizing with a violinist and reconnecting with professional identity. [16:52] – “They’re going to forget anyway”—we address this common concern and explain why the moment still matters. [17:57] – How engagement impacts stress levels, body chemistry, and overall wellness—even if the memory fades. [20:09] – The flexibility of meeting clients wherever they are: at home, in facilities, or even in the hospital. [22:35] – The virtual engagement program and how even clients who seem “non-engageable” can thrive online. [29:19] – How the program supports caregivers by filling in afternoon downtime and reducing agitation. [33:46] – Navigating resistance to care and how Hummingbird can be the first supportive presence in the door. [35:26] – How services are structured, billed, and customized to meet each client’s needs. [42:46] – The partnership with Family Caregiver Alliance and the “Let’s Get Away Together” virtual group experience. [45:17] – Travel themes, shared stories, and creating meaningful community for caregivers and their loved ones. [50:47] – The flexibility of scheduling and why there is no rigid commitment structure. Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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S4 · E8
January 14 · 43 min
Navigating Dementia From Afar: Lisa Jo on Caregiving, Grief & Unexpected Blessings
In this episode of Dementia Discussions, I sit down with Lisa Jo, a longtime member of the support group I co-lead at the Mary S. Easton Center for Alzheimer’s Disease Research at UCLA. Lisa has been navigating the complex, emotional, and often overwhelming role of long-distance caregiving, and today she opens up about her mother’s dementia journey, her father’s decline, and what it was like to step into full-time caregiving during one of the most difficult times in her family’s life. Lisa shares so honestly about the unexpected challenges she faced—sun-downing behaviors, shifting family dynamics, medication management, caregiver burnout, and the heartbreaking realities that arise when a parent no longer recognizes you. She also gives a heartfelt look at the meaningful moments she was able to create with both of her parents during their final years together. Her story is raw, authentic, and full of wisdom for any caregiver walking a similar path. Episode Highlights: [00:00] – Lisa describes early signs of her mom’s sun-downing and the moment her mother no longer recognized her. [00:37] – I welcome listeners to Season 3 and share my gratitude for the community. [01:31] – Introducing Lisa Jo and her connection to our UCLA support group. [02:02] – Lisa paints a picture of who her mom was before dementia—independent, outgoing, and full of life. [03:23] – The beginning of her mother’s cognitive decline and early safety concerns. [04:40] – The emotional toll on her dad as her mom’s personality and memory shifted. [05:50] – Life in independent living and when Lisa decided to seek out caregiver support. [07:02] – Lisa realizes her dad is overwhelmed and begins exploring outside help. [08:40] – Moving in with her parents for 15 months during her dad’s illness and recognizing the true extent of her mom’s impairment. [10:38] – Her dad relinquishes caregiving responsibilities as his own health declines. [12:01] – Balancing full-time remote work while caregiving for both parents. [14:40] – Challenges in communication, accusations, and emotional upheaval caused by dementia. [15:50] – A bittersweet moment when her mom mistakes her for “someone familiar.” [16:50] – Rebuilding an adult relationship with both parents and finding unexpected closeness. [18:52] – How fortunate timing, flexibility, and family planning made care possible. [20:00] – Her father’s passing and preparing her mother for the transition to memory care. [21:37] – Moving her mom into memory care and the thoughtful steps she took to ease the adjustment. [23:46] – Personalizing the new space with colors, familiar furniture, and meaningful artwork. [26:07] – Navigating her mom’s grief and repeated questions after her dad’s death. [28:21] – Using fiblets and reassurance to support her mom emotionally. [30:58] – Long-distance caregiving today—video calls, late-night reassurance, and new complications with care-facility rules. [33:18] – Adjusting to limited access and advocating for communication options. [34:31] – Traveling back East periodically and managing a new diagnosis: multiple myeloma. [36:06] – How the support group has helped Lisa through education, connection, and emotional release. [37:30] – Navigating guilt as a long-distance caregiver and honoring her parents’ wishes. [39:45] – The biggest silver lining—deepening her relationship with both of her parents. [42:16] – Closing the conversation with gratitude and reflection. Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate,
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S4 · E7
Dec 17, 2025 · 42 min
The Soul Doesn’t Get Dementia: Connecting Beyond Words in Caregiving
In this episode, I sit down with dementia counselor, educator, and author Tami Anastasia for a deeply meaningful conversation about what really drives behavior in dementia care. We go beyond surface-level symptoms and talk about the powerful role personal history, emotional patterns, and past trauma play once the brain can no longer filter or suppress them. This is one of those conversations that can completely change how you see dementia caregiving. Tami joins me to discuss her newest book, Dementia Caregiving & Personal History: How to Help Cope, Connect, and Heal, and why this journey—painful as it is—can also be an opportunity for healing for both caregivers and those living with dementia. We explore how connection replaces correction, why the soul does not get dementia, and how caregivers can respond with empathy, reassurance, and boundaries instead of guilt Episode Highlights: [0:00] – When words fail, how caregivers can still connect by speaking to the soul [1:26] – Introducing Tami Anastasia and her work in dementia counseling and education [3:27] – Why dementia behaviors often connect to unresolved personal history [6:45] – How past trauma resurfaces when coping mechanisms disappear [9:01] – Caring for someone who didn’t take care of you—and setting boundaries [12:11] – Using personalized language to reduce agitation and fear [16:16] – Honoring identity and work history in dementia care [19:02] – Caregiver guilt, grief, and the emotional weight of placement decisions [24:23] – Fear-based family histories and nighttime paranoia [29:16] – Personality traits intensifying as dementia progresses [31:56] – Listening to emotional themes, not just words [34:56] – The power of non-verbal connection when language breaks down [38:01] – Giving caregivers permission to acknowledge their limits [40:05] – How to find Tami’s books and upcoming audiobook release Links & Resources: Tami Anastasia's Book Dementia, Caregiving, and Personal History: How to Help, Cope, Connect, and Heal: https://a.co/d/4qoXZ2d Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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S4 · E5
Nov 5, 2025 · 59 min
When Words Fade: Christine's Story of Love, Loss, and Adaptation
In this heartfelt episode of Dementia Discussions, I sit down with Christine, a member of my Alzheimer's Los Angeles caregiver support group and a wife navigating the difficult journey of her husband Steve's early-onset dementia. Christine and I talk about their 46-year marriage, how his brilliant legal career slowly unraveled, and the emotional toll that comes with losing the person you love in pieces. Christine shares her personal reflections with honesty, humor, and wisdom. From the early warning signs she didn't recognize, to the agonizing process of telling their adult children and his law firm, to letting go of the life they once knew—Christine brings us into the deeply personal and complex world of caregiving. If you're a spouse, partner, or family caregiver, this episode is full of truths you’ll likely recognize and encouragement you didn’t know you needed. Episode Highlights: [0:40] - Meet Christine and hear how she and Steve met at debate camp as teenagers [2:20] - A young love story and a 46-year marriage built on intellect and conversation [5:13] - Early signs of cognitive decline during COVID and the initial diagnosis [10:15] - The emotional toll of hiding the diagnosis from family and Steve's law firm [13:55] - Steve's resignation and the loss of identity that came with it [16:55] - Language loss, isolation, and grief within the marriage [22:31] - Comparing dementia caregiving to a marathon and facing unpredictable hurdles [25:14] - The driving dilemma and setting boundaries for safety [29:47] - How caregiving affects patience, control, and old communication habits [34:01] - Traveling with someone with dementia and adapting routines [39:26] - Christine's coping tools: painting, music, exercise, and alone time [42:02] - Recommended reads: Travelers to Unimaginable Lands and Loving Someone Who Has Dementia [44:34] - Ambiguous loss and grieving someone who is still here [45:52] - Financial challenges and the burden of full responsibility [48:49] - Drawing lines for when to seek help or facility care [52:15] - Silver linings: finding support in adult children and reclaiming time for herself [56:18] - Learning to ask for help and connect with others in vulnerable moments Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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S4 · E4
Sep 17, 2025 · 53 min
Dementia, Caregiving & Exit Strategies: A Conversation with Madeline Jaye
This week on Dementia Discussions, I sit down with someone very close to my heart—my childhood best friend, Madeline Jaye. We reconnected after many years, and I was deeply moved to learn that she’s been navigating her own journey as a caregiver to her mother, Bonnie, who now lives with Alzheimer’s and other forms of dementia. Madeline doesn’t just share her caregiving story—she’s also transformed her experience into a one-woman play that’s as hilarious as it is heartbreaking. In this episode, Madeline and I reflect on what it means to care for someone who didn’t always care for you, how humor can be a powerful coping mechanism, and the complexity of aging, memory loss, and family dynamics. You’ll hear about the signs she missed, the chaos she uncovered, and the incredibly creative outlet that helped her process it all. Whether you're a caregiver, a theater lover, or simply someone interested in the raw truths of dementia, this conversation will stay with you. Episode Highlights: [1:43] Reconnecting with Madeline and discovering her caregiving story [3:15] When the signs started—how Bonnie's independence masked memory loss [5:27] Understanding “cognitive reserve” and its role in delaying diagnosis [7:50] The pivotal moment when Madeline confronted her mom [10:36] Navigating testing, early resistance, and inconclusive results [12:53] Bonnie’s home life and hygiene—early warning signs surface [17:41] The uphill battle of introducing help and home care [20:04] Strategies and resistance to caregiving support [23:40] Learning to separate the disease from the person [26:17] How Madeline’s play came to life—and the powerful message behind it [34:56] Playing every character in a solo performance [35:26] Humor in the heartbreak—yes, there’s bacon in the dish cabinet [39:27] Managing Bonnie’s bills, hoarding, and household neglect [44:36] The overwhelming task of stepping into her mom’s financial chaos [47:05] What made it into the play—and what may come next [48:17] Why writing became Madeline’s most powerful coping tool [50:01] Where and when to catch Dementia and Other Exit Strategies live [51:22] Reflecting on Bonnie—the dynamic woman we both knew Links & Resources: Madeline Jaye's Play Info: Dementia and Other Exit Strategies September 26 & 27 at IRT Theater, 154 Christopher Street, NYC Instagram: @madjmoves Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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S4 · E3
Sep 11, 2025 · 50 min
A Son’s Devotion — Steve Lavapies on Navigating Caregiving, Decline, and Connection
I’m honored to welcome Steve Lavapies, a devoted son and a thoughtful member of one of our UCLA caregiver support groups. Steve shares the deeply personal journey of caring for his mother, a brilliant and resilient woman who immigrated to the U.S., became a physician, and faced a long and complex decline due to physical illness and dementia. In this episode, Steve opens up about the realities of caregiving as an only child, the emotional and logistical weight of moving his mom through assisted living, memory care, and ultimately hospice. We talk about guilt, grief, resilience, and the hard but beautiful truth that connection, even in decline, is possible. Episode Highlights: [1:20] - Introducing Steve, a fellow UCLA support group member and caregiver for his mom [2:31] - A portrait of Steve’s mom before dementia—her bold immigration story and medical career [4:33] - Moving to LA to be closer to family and transitioning into assisted living [6:27] - Early physical decline and recognizing the signs of needing more care [8:39] - The beginning signs of cognitive decline during the pandemic [12:10] - A shocking moment during cognitive testing and a mindset shift in caregiving [14:15] - Navigating caregiving solo as an only child [18:59] - Dealing with facility limitations, caregiver compatibility, and daily oversight [20:46] - When her sharp personality began to fade, and what Steve missed about it [25:06] - The transition to memory care—logistics, emotion, and adaptation [29:46] - Watching physical abilities diminish, and the bittersweetness of presence [33:28] - The parallels between dementia care and parenting, and giving yourself permission to rest [35:49] - The fall that changed everything and led to hospice care [41:46] - Experiencing grief, guilt, and—eventually—relief [44:15] - The value of support groups and shared stories in the caregiving journey [47:18] - The moment of recognition in community—“We had the same mother!” [48:13] - Reflecting on Steve’s strength, his mother’s legacy, and the healing power of story Links & Resources: Visit the podcast website: https://dementiadiscussions.net Call Barbara directly at 310-362-8232 If this episode touched you or helped you feel a little less alone, please consider rating, following, sharing, and reviewing the podcast. Your support makes a world of difference, and helps this community of caregivers continue to grow. Thank you so much for listening, and I’ll see you next time on Dementia Discussions. 💙
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S4 · E2
Aug 14, 2025 · 56 min
Caring Through Chaos: Lorena Llamas' Journey as a Daughter and Caregiver
Welcome back to Dementia Discussions. In this heartfelt episode, I sit down with my dental hygienist, Lorena Llamas, who opens up about a deeply personal journey—caring for her beloved father, recently diagnosed with Alzheimer’s. What started as small, everyday memory lapses soon led Lorena down a path of advocacy, navigating doctors, family dynamics, and the emotional rollercoaster of watching a parent change before your eyes. Lorena shares tender stories about her dad's lively spirit, his close bond with family, and how a recent family cruise turned into a powerful wake-up call about the realities of dementia. We talk about everything from medical advocacy and caregiver burnout to finding humor in the hard moments and the importance of social connection. This conversation is full of heart, wisdom, and the kind of real talk that caregivers everywhere will relate to. Episode Highlights: [2:06] - Lorena introduces her father, a hardworking man with a big heart and a history of resilience. [3:34] - The first signs of memory loss and how repeated questions raised red flags. [6:33] - Struggles with getting a diagnosis and advocating through medical skepticism. [10:50] - Family dynamics and the neurologist’s push for more frequent interaction. [14:15] - Sweet memories and painful moments of forgetfulness begin to unfold. [16:54] - A cruise trip becomes a wake-up call: wandering, confusion, and safety concerns. [20:47] - The challenges of tracking and protecting a loved one with dementia. [28:00] - Public outbursts, constant apologies, and navigating loss of social filters. [36:11] - Lorena’s concerns about her mom’s emotional and physical toll as the primary caregiver. [39:10] - Exploring adult day programs and activity options for increased socialization. [43:44] - Watching long-term memory fade: the heartbreaking loss of a signature. [49:26] - Coping through humor, family support, and holding on to moments of joy. Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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S4 · E1
Jul 17, 2025 · 53 min
Navigating Dementia with Compassion and Clarity: A Candid Talk with Dr. Miriam Winthrop
Welcome back to Dementia Discussions! I’m so grateful to be back with you after a bit of a hiatus, and today’s episode is a truly meaningful one. I sit down with Dr. Miriam Winthrop, an adult and geriatric psychiatrist whose compassionate approach and wealth of knowledge make her a true gem in the dementia care world. We open up about the recent California fires that disrupted both our lives and how trauma and caregiving intersect, especially in these unpredictable times. This conversation dives deep into the emotional, medical, and behavioral complexities of dementia. Dr. Winthrop shares how she supports individuals from the early signs of cognitive decline to the later stages of dementia, helping both patients and their families manage symptoms, medication, and caregiving strategies. Whether you’re navigating a new diagnosis or have been caregiving for years, this episode offers insight, validation, and practical tools for every step of the journey. Timeline Summary [1:33] – Introducing Dr. Miriam Winthrop and reconnecting after the LA fires [6:37] – How patients find their way to a geriatric psychiatrist and the signs of prodromal dementia [10:24] – The complexity of diagnosing mild cognitive impairment (MCI) [15:43] – Understanding MCI, psychiatric symptoms, and the role of early treatment [18:58] – Leqembi and considerations around early intervention and clinical trials [21:28] – Aricept, Namenda, and their behavioral uses in dementia care [28:15] – Behavioral challenges in moderate dementia and non-medication strategies [31:39] – Communicating creatively with loved ones using the DARE method [36:20] – What causes delirium and how to spot it in dementia patients [40:19] – The emotional toll and shifting family dynamics in the middle to later stages [45:41] – Acceptance, letting go of expectations, and redefining “normal” [47:57] – Medication tapering and palliative care considerations in late-stage dementia [51:57] – When hospice is involved and the importance of rational medication management Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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S3 · E22
Jan 9, 2025 · 51 min
Alzheimer’s Caregiving: A Journey of Love, Patience, and Resilience
Welcome to the first episode of season three of Dementia Discussions! In this heartfelt episode, I sit down with Charlene, a dedicated caregiver navigating the emotional and practical challenges of supporting her sister-in-law with Alzheimer’s. Charlene brings a unique perspective as a sister-in-law and sibling, sharing deeply personal stories about her family's journey through this devastating disease. We explore the complexities of caregiving, from handling denial and family dynamics to managing difficult conversations and making tough decisions. Charlene’s resilience, compassion, and humor shine through as she offers practical tips, emotional insights, and a dose of inspiration for anyone on a caregiving journey. This conversation is a powerful reminder that even in the hardest moments, there is love, laughter, and hope. Episode Highlights: [0:00] - Charlene shares her caregiving mantra: D.A.R.E. (Don’t Argue, Reason, or Explain). [0:41] - Barbara welcomes Charlene and introduces her caregiving journey. [5:59] - The early signs of Alzheimer’s: identifying memory issues and the challenge of family denial. [10:46] - The driving dilemma: taking away keys and navigating emotional fallout. [15:09] - Strengthening family bonds and maintaining a united front in caregiving. [19:50] - Addressing the role of denial in Alzheimer’s diagnoses and caregiving. [27:05] - Stories of wandering: handling safety concerns and learning to adapt. [34:42] - The need for outside help: hiring caregivers and planning for future care. [35:39] - Charlene’s self-care strategy: the power of a “three-hour vacation.” [39:26] - Building a support network and the importance of acceptance in caregiving. [45:24] - Creative caregiving solutions: using scrapbook projects and games to connect. [48:24] - Patience and compassion: navigating daily challenges with grace. Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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S2 · E21
Dec 12, 2024 · 45 min
Navigating Love and Loss: A Caregiver's Tale of Resilience with Andrew Bloomenthal
In this poignant episode, I sit down with Andrew Bloomenthal, a writer and caregiver, to delve into his heartfelt story about navigating his father’s journey with Parkinson’s-related dementia. Andrew’s article in Boston Magazine struck a chord with readers, and today he joins us to share the deeply personal moments that shaped his caregiving experience. From navigating family dynamics to finding moments of levity and grace in the midst of confusion, Andrew’s story is one of resilience, vulnerability, and love. This episode is a testament to the strength of caregivers and the unbreakable bonds of family. Episode Highlights: [2:18] - Andrew introduces his father, a compassionate personal injury lawyer with a zest for life and a talent for music, photography, and exercise. [6:03] - The early signs of cognitive decline and the emotional hurdles of recognizing and addressing them. [11:54] - Andrew reflects on the difficulties of maintaining patience and how caregivers commonly experience this challenge. [16:22] - Struggles with medication compliance and how moving to an assisted living facility eased those challenges. [24:18] - The unforgettable courthouse day: a surreal, improvisational moment of caregiving that highlights the power of human connection. [35:07] - A stranger’s act of kindness in the courthouse and how it became a transformative moment for Andrew and his father. [43:39] - The importance of sharing caregiving stories and why Andrew believes his father would have been proud of how he was honored. Resources: Andrew Bloomenthal’s Boston Magazine article My Dad’s Last Day in Court https://www.bostonmagazine.com/news/2024/08/13/dementia/ Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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S2 · E20
Nov 19, 2024 · 52 min
Until There’s a Cure, There’s Community: Wine, Women, and Dementia
In this heartfelt episode of Dementia Discussions, I’m joined by the incredible Kitty Norton, a former assistant editor turned caregiver, blogger, and filmmaker. Kitty shares her inspiring journey from her mother’s dementia diagnosis to becoming her primary caregiver, a role that profoundly changed her life. We explore her transition into advocacy through her candid blog, Stumped Town Dementia, and her documentary film Wine, Women, and Dementia, which is now airing on PBS. Kitty brings her signature humor and raw honesty as we discuss caregiving challenges, family dynamics, and how humor can be a lifeline in even the most difficult moments. From navigating the "rage stage" to finding unexpected community in caregiver forums, Kitty’s story is one of resilience, love, and laughter in the face of adversity. Episode Highlights: [0:46] - Welcoming Kitty Norton and diving into her mom’s dementia diagnosis. [3:20] - Kitty’s early realizations about her mom’s condition and navigating the diagnosis process. [8:10] - Making the courageous decision to move to Portland and care for her mom Full-time. [11:10] - Stories from the “rage stage” and how dementia changed her mom’s personality. [17:03] - The life-saving guidance of geriatric psych specialists and forums. [29:32] - How Kitty’s blog, Stumped Town Dementia, became a lifeline for caregivers worldwide. [38:40] - Creating Wine, Women, and Dementia: A journey of healing and storytelling. [49:23] - PBS distribution and Kitty’s mission to bring caregivers together through her film. Connect with Kitty Norton: Kitty Norton’s blog: Stumped Town Dementia Wine, Women, and Dementia documentary: Official Website Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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S2 · E19
Sep 10, 2024 · 53 min
Navigating Changes with Lewy Body Dementia
In this episode, I had the pleasure of speaking with Sherri, a devoted caregiver whose husband Ray has been diagnosed with Lewy body dementia. Sherri shares her journey, from noticing the first subtle changes in Ray's behavior to the emotional and practical challenges they face today. We delve into how Ray's fearless personality and active lifestyle shifted dramatically as the disease progressed, and how Sherri has had to adapt to these changes. This episode is a touching reminder of the resilience and love that caregivers embody, and it offers insights and advice that can help others facing similar struggles. Episode Highlights: [01:32] - Sherri describes her husband Ray's fearless personality before his diagnosis. [07:25] - Discussing the changes in Ray’s behavior and the initial signs of cognitive decline. [10:50] - The difficulty in getting a proper diagnosis and the eventual discovery of Lewy body dementia. [18:57] - Sherri's efforts to keep Ray active and engaged despite his resistance. [22:29] - The tough decision to stop Ray from driving and the emotional impact it had on him. [30:28] - Sherri shares the emotional and practical challenges of adjusting to Ray's cognitive changes. [43:33] - The importance of support groups and meditation in Sherri's caregiving journey. [48:51] - Sherri’s strategies for maintaining patience and emotional stability. Do you have a caregiving story to share? Barbara would love to hear from you! Please leave her a message at 310-362-8232 or send her an email through DementiaDiscussions.net. If you found value in today's episode, please don't forget to rate, follow, share, and leave a review. Your feedback helps us reach more listeners and continue producing this content.
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