Ep. 8 From Caregiver to Activist: Dr. George Ackerman and a Son’s Promise

"We treat our animals better than our loved ones." This heartbreaking realization fueled Dr. George Ackerman’s transition from a career in law and policing to becoming one of the most dedicated Parkinson’s disease advocates in the world.

In this deeply personal episode, Lisa Volenec sits down "knee-to-knee" with George to discuss his organization "Together For Sharon" and the reality of being a caregiver during his mother Sharon’s silent 18-year battle. 

George opens up about the "Sharonisms" he misses most, the trauma of Parkinson’s hallucinations and delusions, and why he coined the term "secondary Parkinson’s" for the family members who hold their loved ones' hands until their very last breath.

In this episode, we explore:

• The Silent Struggle: Why many patients hide their diagnosis to avoid "burdening" their families.

• The caregiver's journey: Navigating the healthcare system, from movement disorder specialists to the need for "death with dignity."

• A Legacy in Ink: George’s mission to educate the next generation through his Parkinson's children’s book and his upcoming documentary.

• Advocacy vs. Family: The emotional tug-of-war between fighting for a cure and being present for those still here.

Whether you are a caregiver, a patient, or someone navigating grief, George’s story is a powerful reminder that while we may feel alone in the dark, there is a global community fighting to turn on the light.

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About This is Parkinson’s:

This is Parkinson’s is a nonprofit storytelling platform dedicated to sharing honest conversations about life with Parkinson’s disease. Through interviews with patients, caregivers, advocates, and experts, TIP aims to educate, reduce stigma, and build a community around the realities of living with Parkinson’s.

Learn more: https://www.thisisparkinsons.org

Contact: info@thisisparkinsons.org

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