Episode 7 - A lively discussion on receiving a diagnosis for a muscle wasting condition and available support

Our latest episode of Muscles Matter focuses on the point of receiving a diagnosis for a muscle wasting condition and the support made available from that point onwards. 

Our guests Charlotte Hardwick and Stewart Ross, both living with a muscle wasting condition, share their experiences and engage in a lively discussion with Kerry Spink our podcast host whose twin sons live with FSHD.  

Drawing on their own lived experiences, all three discuss how diagnosis and support currently looks, what an ideal diagnosis and support scenario might be, and the support they’ve found most useful.