Skip to content
Artwork for The Chronic Truth
The Chronic Truth · April 17 · 31 min

From Billion-Dollar Projects to End-Stage Liver Disease: How Lorrinda Gray-Davis Became an Advocate

Lorrinda Gray-Davis went from managing billion-dollar construction projects to crash-landing in an ER with end-stage liver disease, then inoperable liver cancer, then a high-risk transplant that was only possible because of clinical trials. As president of TRIO and vice chair of OPTN's Patient Affairs Committee, she's turned that journey into systems that actually help: a peer-to-peer transplant support meeting running six years online, and the Transplant Medication Navigator, which has taken medications from hundreds of dollars to single digits for patients who didn't know they had options. This one is packed with information the transplant community needs and isn't hearing anywhere else. CHAPTERS / TIMESTAMPS 00:00 Facing the Diagnosis: A Life-Changing Moment 06:51 Navigating the Transplant Journey 14:12 Empowerment Through Advocacy and Support 19:56 Understanding the Transplant System 25:49 Living Life After Transplant: A New Perspective CONNECT & RESOURCES 🌐 Website: trioweb.org 💊 Transplant Medication Navigator: transplantmedicationnavigator.com 📧 Email: ldavis@trioweb.org The Chronic Truth Podcast: 🌐 Website: chronictruthpodcast.com 📱 Instagram: @ChronicTruthPodcast 📘 TikTok: @chronictruthpodcast 💬 Share Your Story: Testimonials 📋 Community Survey: Survey Production: Podcast Mechanic

0:00-31:12

transcript

No transcript — this publisher did not publish one.

show notes

Lorrinda Gray-Davis went from managing billion-dollar construction projects to crash-landing in an ER with end-stage liver disease, then inoperable liver cancer, then a high-risk transplant that was only possible because of clinical trials. As president of TRIO and vice chair of OPTN's Patient Affairs Committee, she's turned that journey into systems that actually help: a peer-to-peer transplant support meeting running six years online, and the Transplant Medication Navigator, which has taken medications from hundreds of dollars to single digits for patients who didn't know they had options. This one is packed with information the transplant community needs and isn't hearing anywhere else.

CHAPTERS / TIMESTAMPS

00:00 Facing the Diagnosis: A Life-Changing Moment
06:51 Navigating the Transplant Journey
14:12 Empowerment Through Advocacy and Support
19:56 Understanding the Transplant System
25:49 Living Life After Transplant: A New Perspective

CONNECT & RESOURCES

🌐 Website: trioweb.org
💊 Transplant Medication Navigator: transplantmedicationnavigator.com
📧 Email: ldavis@trioweb.org


The Chronic Truth Podcast:
 
🌐 Website: chronictruthpodcast.com
📱 Instagram: @ChronicTruthPodcast
📘 TikTok: @chronictruthpodcast
💬 Share Your Story: Testimonials
📋 Community Survey: Survey

Production: Podcast Mechanic

links8