Born With It, Diagnosed at 50: Dwayne Wilson on Pompe Disease and Why Early Testing Saves Muscle

Dwayne Wilson was born with Pompe disease and didn't find out until he was 50 years old, when he couldn't climb a staircase, couldn't get off the toilet, and felt like someone was standing on his chest in a swimming pool. Eight years later, he's on biweekly infusion #194, rolled his Dolphin-stickered electric wheelchair to 14 Anaheim Ducks games this season, and posted a laser show video that got 4.1 million views and counting. He returns to The Chronic Truth to talk about treatment, mental health, hybrid mobility, and why getting the diagnosis is never the end, it's a new beginning. CHAPTERS / TIMESTAMPS 00:00 Introduction to Pompeii Disease and Advocacy 09:46 Dwayne's Journey to Diagnosis 20:06 Living with Pompeii Disease 30:00 Advocacy and Spreading Awareness 39:48 Mental Health and Quality of Life CONNECT & RESOURCES Dwayne: 📱 Instagram: @SmashingPompe 📱 Facebook: Smashing Pompe / Dwayne Wilson 🐦 X (Twitter): @SmashingPompe 💼 LinkedIn: Dwayne Wilson (professional content and columns) 🌐 Pompe Champions Program: communityofus.com (lists all 10 Pompe champions) 💪 Free wristbands: Message Dwayne directly — says "Pompe Awareness" and "Smashing Pompe" The Chronic Truth Podcast: 🌐 Website: chronictruthpodcast.com 📱 Instagram: @ChronicTruthPodcast 📘 TikTok: @chronictruthpodcast 💬 Share Your Story: Testimonials 📋 Community Survey: Survey Production Partner: Podcast Mechanic