IBD, an ostomy and a new purpose: Alicia's path to advocacy

🎙️ In episode 23 of the Colitis Unfiltered podcast, I speak with Alicia, who was diagnosed with ulcerative colitis at just 14 after years of unexplained stomach pain, bleeding, and symptoms that were repeatedly dismissed. Within months of her diagnosis, her condition became so severe that she lost her colon and woke up from emergency surgery with an ostomy she never had the chance to prepare for. 💜 Diagnosed as a teenager and later re-diagnosed with Crohn’s disease, Alicia talks about navigating body image, multiple surgeries, a J-pouch, and the emotional journey of learning to accept a permanent ostomy. She reflects on finding strength through community, rebuilding confidence, and how finally receiving the right treatment transformed her quality of life. 👥 Today, Alicia is the acting president of Girls With Guts, one of the largest support communities for women living with IBD and ostomies. Through storytelling, advocacy, and education, she helps thousands of women navigate body image, relationships, motherhood, and life with chronic illness, proving that even the most difficult diagnosis can become a source of purpose and hope. For more inspiring stories from the bathroom floor, visit colitisunfiltered.com