"I Did It" - Matt Lamos and the Mission Behind Down with Running
transcript
show notes
Ultrarunner and Down with Running founder Matt Lamos shares how his daughter Lilly inspired a mission to help individuals with special needs pursue meaningful physical goals one step, one challenge and one "I did it" at a time.
In this episode, we talk about-
Matt's path from soccer and casual fitness to ultrarunning
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The surprisingly hilly side of trail running in Iowa
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Lilly's birth and the family's first 40 days in the hospital
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How Down syndrome can affect muscle tone, development and milestones
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Lilly's progression from using a walker to running down the aisle at Matt's wedding
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Why the words "I can't" and "I don't want to" are not interchangeable
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Rethinking the language we use when talking about a "healthy" child
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Matt's honest first emotions after learning that Lilly had Down syndrome
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Why Lilly's siblings treat her like their sister—not someone who needs different expectations
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The mission behind Down with Running and its focus on instructional encouragement
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Why meaningful physical goals can range from walking a mile to running an ultramarathon
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Creating access to shoes, race entries, programs and one-on-one support
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The Cedar Bend Endurance Run and using local races to fund the mission
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Matt's long-term vision for Lilly and Down with Running
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Why lasting change often starts close to home
(00:00) Meet Matt Lamos and Down with Running
(02:57) From soccer to ultrarunning
(05:20) Lilly's story and understanding Down syndrome
(10:34) From using a walker to running down the aisle
(12:23) "I did it" and the difference between "can't" and "don't want to"
(14:19) Rethinking health and Matt's first emotions as Lilly's dad
(21:59) Raising Lilly alongside her siblings
(24:51) The mission behind Down with Running
(26:56) Why every physical goal deserves support
(30:58) Early wins, current hurdles and the Cedar Bend Endurance Run
(33:42) Matt's 15-year vision for Lilly and Down with Running
(37:22) Making a difference close to home
Resources mentioned-
Cedar Bend Endurance Run — September 5, 2026, in Waverly, Iowa