transcript
show notes
A doctor in Germany says he can treat complex vascular compressions. Health officials say it’s experimental and dangerous. Jemima’s family say he saved her life, but we meet another woman who wishes she never went under the knife.
Content warning: this episode contains graphic descriptions of surgical procedures and might not be suitable for younger listeners, please take care while listening.
See photos, video and read more in a special digital feature: Life changing diagnosis or dangerous experiment: “He left me in a mess”
A special thanks to the young women and their families for sharing their stories for this series. And thank you to the doctors, surgeons and specialists in New Zealand and overseas for sharing their medical knowledge and expertise.
If any of these stories affect you – you can find more information about EDS, at ehlers-danlos.org.nz - or you can look up EDS NEW ZEALAND on Facebook and Instagram.
